Comments on: A Quiet Disparity: Brandon’s Story http://www.cthealth.org/blog/a-quiet-disparity-brandon%e2%80%99s-story Changing Systems, Improving Lives Tue, 07 May 2013 20:27:04 +0000 hourly 1 http://wordpress.org/?v=3.5 By: Daileann http://www.cthealth.org/blog/a-quiet-disparity-brandon%e2%80%99s-story#comment-390 Daileann Sun, 16 Sep 2012 02:31:59 +0000 http://www.cthealth.org/?p=4499#comment-390 Hi Shanda,

Thank you so much for responding. I spoke with the executive director of CQSCC who shared with me she found the best way to speak to the students in a school is by contacting the principal. The steps she tookwaste
1. Presenting the information to the principal
2. Try to set up a lunch and learn with the educators i.e. the teachers of science (biology) classes where genetics will be discussed during the semester(provide the lunch)
3. Construct your education tool to fit your audience
4. It has worked for us to attend during science class as a guest speaker

We are still in the process of trying to contact the president of the PTA to have time during a PTA meeting to educate parents on SCD.
I hope this helps

]]> By: chf_admin http://www.cthealth.org/blog/a-quiet-disparity-brandon%e2%80%99s-story#comment-389 chf_admin Fri, 14 Sep 2012 18:13:51 +0000 http://www.cthealth.org/?p=4499#comment-389 Hi Shanda,

Thanks for reading & watching, Shanda. I’m sorry to hear that your son was born with SCD SC. I hope he is doing as well as little Brandon.

I’ve asked Daileann to weigh in on how educational staff, parents, and fellow students can understand SCD better in the school setting. I assume you mean you’re interested in having them understand the disease so they can better relate to the needs of your son?

–Jenn

]]> By: Shanda Montford http://www.cthealth.org/blog/a-quiet-disparity-brandon%e2%80%99s-story#comment-388 Shanda Montford Fri, 14 Sep 2012 11:17:50 +0000 http://www.cthealth.org/?p=4499#comment-388 Hello,
My name is Shanda Montford and I am Sickle Cell Trait Carrier as well as my husband. We knew that we had the trait when we decided to start a family but also knew tha there was a chance that he could be born with just the trait as well. Our son has SIckle Cell Disease SC. One thing that I see which not really impacted is the education of Sickle Cell in the schools. We are doing alot to change the hospitals and will continue to do so but there is not enough education in the schools about Sickle Cell. Yes we have the 504 plan but that is it. I would like to know what exaclty can we do in the schools to education not only the staff but other parents and fellow students as well?

Thank you for sharing your this information.

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